Monday, January 16, 2012

Waiting on Killian

I'm not quite sure what to say about this day. So instead of repeating all the things the doctors are telling us to prepare for I will instead rejoice over the following:
  • Even in the midst of this, as his tiny little heart is giving way, he still finds the strength to raise an eyebrow or crack open a lid at the sound of his mama's voice.
  • We have the most amazing circle of family and friends ever to gather together in a time of need, I just know it.
  • He is still and will always be the most beautiful baby boy I have ever seen.
We are just waiting on Killian, our strong, brave little warrior. And no matter what he chooses to do, either fight or go home to glory, he has been a blessing to so many. We are all better for having known him.

Squeeze your little ones extra tight for us tonight. And for all you other CDH mamas, aunts and grandparents out there...DON'T STOP FIGHTING!!!

Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.

Any donation you're able to make will help this sweet baby boy - from getting his family to & from the hospital to helping with Killian's care. From all of us who love Killian and his family, thank you!

All donations go directly to Killian's care and the care of his family. The paypal donation account was set up by a friend, Liz Wolfe, whose name and email appears on the PayPal page. Liz manages all donations with the support and oversight of Killian's aunt, Layna Lambert Dugan.
More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.


  1. Killian is gorgeous! Go little man go! I'm a mother of a little 2.5 year old boy who was born with LCDH as well. Although we were able to keep Alistair off ECMO the journey has given us so much to be thankfull for. I will send all my good vibes your way! I've done the blogging thing as well and continue to do it. It has been very therapeutic for me and I hope you find the same....((HUGS)) to all ~ Julie

  2. I am holding Killian, his parents and loved ones, and his blessed caregivers, in my heart and prayers today. Sending extra strength to you, mama and daddy, for this journey.
    Corinne in Calgary, Canada
    Mama to Samuel, lcdh survivor, Feb1/11

  3. I am praying fervently for Killian and his whole family!

    Lisa, Mom to Ramsey (LCDH)