Onslaught of Helplessness

Killian is 12 days old today. It feels like so much has happened since the last post, some good and some bad. In short, our little man is fighting HARD today and our hearts are breaking for him. They took Killian off ECMO on Wednesday and it'd be an understatement to say it's been a roller coaster since.

The good:

• He came off blood pressure medication completely.
• He got his catheter out and has been peeing more. Lindsey even got to change her first diaper!
• He had one night of peace this week, for which we are beyond thankful.

The things we need you to pray for RIGHT NOW:

• The doctors discovered that he has an infection, which we're told is not uncommon for anyone (let alone a baby) who has had this many surgeries. He is now on antibiotics and we need them to work fast.
• His oxygen levels, most likely from the infection, aren't great. Grandpa Garry told me (Aunt Layna) that the doctors are saying that they can't put him back on ECMO, so it's up to Killian now.
• Family is traveling back to Nashville again (Grandpa Garry & Kear Bear), so please pray that they make it safely and quickly. 

Thank you all for your continued prayers. We'll keep you posted as best we can. 

Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.

Any donation you're able to make will help this sweet baby boy - from getting his family to & from the hospital to helping with Killian's care. From all of us who love Killian and his family, thank you!

All donations go directly to Killian's care and the care of his family. The paypal donation account was set up by a friend, Liz Wolfe, whose name and email appears on the PayPal page. Liz manages all donations with the support and oversight of Killian's aunt, Layna Lambert Dugan.

More about CDH from CHD Support:

CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.