Wednesday, January 11, 2012

Not Out of the Woods BUT....

If I even attempted to list all the things our family is thankful for and celebrating, I'd wear my keyboard down! In the face of insurmountable health challenges and bleak doctors' outlooks, he has managed to blow us away with his resiliency, glimmers of personality and dashing good looks!

I know most of you are following Aunt Layna's Facebook updates, but just to summarize:
  • The pulmonary hypertension that was putting pressure on the right ventricle has reduced a little bit. Still not where we want it, but we'll take it!
  • He was off ECMO for 10 minutes yesterday and during that time his lungs DID oxygenate his blood!!! So that means his lungs are at least capable of doing it!
  • He has gone completely off his blood pressure medication.
  • His precious, tiny, little baby lungs are improving every day!
He definitely has a long road ahead of him, and we know there will be good days and bad days, but yesterday was  a GOOD day! And praise the Lord, today is looking the same. :) 

-Aunt Layna

Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.

Any donation you're able to make will help this sweet baby boy - from getting his family to & from the hospital to helping with Killian's care. From all of us who love Killian and his family, thank you!

All donations go directly to Killian's care and the care of his family. The paypal donation account was set up by a friend, Liz Wolfe, whose name and email appears on the PayPal page. Liz manages all donations with the support and oversight of Killian's aunt, Layna Lambert Dugan.
More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.

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