- Killian made it through another surgery! That's a total of six surgeries now in 34 days.
- His incision from the repair surgery is now closed and healing well.
- He continues to tolerate his feedings through his feeding tube, allowing him to also take the heart medication he needs to help with his pulmonary hypertension.
- His saturation levels are staying close to 100!
- He continues to handle being weened down on the vent.
- His heart rate has come down which we're praying and believing is a sign that maybe his heart isn't working as hard as it has been.
- He continues to grow. In fact, he now weighs 9lbs 5oz! (what a fatty!- kidding)
TODAY is another big day. They will be doing a echo to see how his heart is doing. We desperately need to see some improvement in his pulmonary hypertension as we've been told that he can't survive with his heart working as hard as it has these last five weeks. Please pray/send positive thoughts for a strong strong heart!
On a personal note, I've felt compelled lately to write this lately because we know we have people across the world, of all different walks of faith, rooting for Killian since before he was born. And we love YOU ALL for it!
I'm sure by now you have deduced that Lindsey (Killian's mama), and our family are Christians. We believe in Jesus. We believe in the power of the Holy Spirit. We believe in the power of prayer. And we believe in the peace and healing the Bible tells us God promises to those who believe. That is our truth. And if fact, that is what has gotten us through this hard time.
BUT (non-Christians don't stop reading)!!! We respect that not everyone may believe what we believe. And we are HONORED, truly humbled, that no matter what you believe, you have taken time out of your day to check in on him, send positive thoughts, meditate on his healing and read this blog right now :). Please please don't stop!
I say all of this because I don't ever want anyone to feel turned off by our requests for prayers or praises to God. It's simply the language in which we speak. For us, if our little miracle Killian brings joy or hope to your life (in whatever form) then we are in turned blessed!
So in short dear friends, keep those prayers and positive thoughts coming! I've said it before, but I'll say it again: we know they are making a difference!
-Hugs from Aunt Layna
Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.
We are overwhelmed by the amount of people who have asked for an avenue to help Killian, Lindsey and the family. Any donation made below will go to help pay for food while staying in the hospital, gas back and forth, travel for family and the general care Killian will be receiving beginning on the glorious day he leaves the hospital!
All donations go directly to Killian's care and the care of his family. Also, ten percent of all money collected will be donated to Cherubs, The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. The paypal donation account was set up by a friend, Liz Wolfe, whose name and email appears on the PayPal page. Liz manages all donations with the support and oversight of Killian's aunt, Layna Lambert Dugan.
More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.