After eight long weeks, 56 days in the hospital, we got to hear the faintest, sweetest sounds of life. We heard Killian cry! See the doctors at Vanderbilt are so incredible, they intubated Killian before he ever took his first breath, so we've never heard his voice. We've only seen silent cries . I'll never forget the night he was born, after they rushed him to the NICU, exhausted and emotional, my dad (who was in the delivery room) broke down and said, "I just wanted to hear him cry. That's how it's supposed to be."
Well guess what pops...another prayer answered! Lindsey and I went to church together Sunday. After an incredible sermon and an awesome night with Killian Saturday (post later about that- first bath, her holding him for the third time, etc.) we were on cloud nine.
As we drove to the hospital she whipped out her cell phone. "Three missed calls. One from the hospital." Slight panic set in.
"Hi Lindsey it's Dr. Harrelson," we were surprised. She was giggling. "Killian's fine, but um...well...he extubated himself this morning. He's actually doing really well. Call me back."
That little stinker had pulled out his own breathing tube!
And here's what we got to hear....
Since then Killian has been doing great, all things considered! His oxygen levels (which would be a major concern) have been amazing! He's having some digestion issues. Please pray/send good vibes about that. !
Next up for the superstar will be coming down on his nitric and pain meds!
Will write more when I can! Hugs to you all!
xoxox Aunt Layna
Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.
We are overwhelmed by the amount of people who have asked for an avenue to help Killian, Lindsey and the family. Any donation made below will go to help pay for food while staying in the hospital, gas back and forth, travel for family and the general care Killian will be receiving beginning on the glorious day he leaves the hospital!
All donations go directly to Killian's care and the care of his family. Also, ten percent of all money collected will be donated to Cherubs, The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support.
More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.