Monday, February 27, 2012

Killian Cries (Aloud) For The First Time!!

Oh wow. I have so much to write about this past weekend in Nashville, all of which is touching, marvelous and fuel for many future blog posts. Killian DEFINITELY showed off for his aunt Layna this weekend :). But I want to get to the really really good stuff first.

After eight long weeks, 56 days in the hospital, we got to hear the faintest, sweetest sounds of life. We heard Killian cry! See the doctors at Vanderbilt are so incredible, they intubated Killian before he ever took his first breath, so we've never heard his voice. We've only seen silent cries . I'll never forget the night he was born, after they rushed him to the NICU, exhausted and emotional, my dad (who was in the delivery room) broke down and said, "I just wanted to hear him cry. That's how it's supposed to be."

Well guess what pops...another prayer answered! Lindsey and I went to church together Sunday. After an incredible sermon and an awesome night with Killian Saturday (post later about that- first bath, her holding him for the third time, etc.) we were on cloud nine.

As we drove to the hospital she whipped out her cell phone. "Three missed calls. One from the hospital." Slight panic set in.

"Hi Lindsey it's Dr. Harrelson," we were surprised. She was giggling. "Killian's fine, but um...well...he extubated himself this morning. He's actually doing really well. Call me back."

That little stinker had pulled out his own breathing tube!


And here's what we got to hear....


video


Since then Killian has been doing great, all things considered! His oxygen levels (which would be a major concern) have been amazing! He's having some digestion issues. Please pray/send good vibes about that. ! 

Next up for the superstar will be coming down on his nitric and pain meds! 

Will write more when I can! Hugs to you all!

xoxox Aunt Layna

Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.

We are overwhelmed by the amount of people who have asked for an avenue to help Killian, Lindsey and the family. Any donation made below will go to help pay for food while staying in the hospital, gas back and forth, travel for family and the general care Killian will be receiving beginning on the glorious day he leaves the hospital!

All donations go directly to Killian's care and the care of his family. Also, ten percent of all money collected will be donated to Cherubs, The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support.

 

More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.






3 comments:

  1. What a beautiful sound! So happy for you all! :)
    Leslie (www.babybeehelms.blogspot.com)

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  2. I am sooooo happy for you all!!!!! I remember those days perfectly - the first hold, the first bath, the first cry. CDH is tough, but it also makes everything in life so much more special!!! Many prayers for continued progress!!!
    Hugs,
    Jennifer
    Mom to Dakota 12-25-2008
    RCDH survivor

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  3. No greater sound in the world than hearing your baby communicating they are alive!! I remember lying in bed the first time I heard my son's voice (other than a cry) and thanking God for blessing me. I can only imagine the trial of having to wait and I'm so glad to hear how He is answering prayers day by day. As always, you are in my prayers. Go Killian!!

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