- His EEG hat is off and there have been no visible seizures (that we know of) in the last day or so.
- His heart rate is down in the normal range! We're praying that this is a sign that maybe there has been improvement in his pulmonary hypertension. PRAY/SEND POSITIVE THOUGHTS!!
- He got his hair washed :). We thought it might be turning red. Turns out it was just dirty!
- He continues to put up solid saturation numbers!
Now, let me tell you a little story about this amazing company I work for and coworkers I love...
BGT Partners. We have powerhouse clients and the cream of the crop when it comes to employees (case in point!). It has been voted one of the best places to work in the country more times that I can keep track of. Maybe it's the great pay. The sound strategy. The beer cart that rolls around on Fridays. Or maybe, just maybe it's one of the greatest places to work in the country because of things like this...
BGT has supported me 110% through Killian's journey. Anytime I needed to go to Nashville it wasn't even an issue. My team members covered all work for me without hesitation. They even sent Lindsey a lovely flower bouquet and Killian a BGT blue stuffed animal! I can't get through the day without at least 10 people stopping me to ask me how he's doing, including the CEO, David Clarke, who has told me that he's scared he'd get in trouble by HR if they realized how often he looks at my Facebook profile for Killian updates :). As if all of that wasn't enough, they decided to take it a step further.
BGT is hosting a Valentines Day lunch in our Miami office called "Killian's Kisses" to raise money for Killian and CDH Awareness! At the lunch, everyone will be able to purchase "BGT flowergrams" for $2 a piece to send to other employees with all money going to Killian's care! How cute is that! As always, of any money raised for Killian, we'll be giving at least 10% back to support CDH awareness.
And it get's better! They have directed their nearly 12,000 adoring fans on Facebook and Twitter (become one and show them some love...LIKE THEM OR FOLLOW THEM) to donate on Killian's blog or directly to Cherubs-CDH Support. Bonus effect>>>they are raising awareness for CDH!!!
I want to give a special shout out to Sonja, Anna B. and Eric H. for coming up with this idea, for Leo who designed these incredible logos, for the wonderful PR team for pushing this out to the world and to everyone at BGT for their love and support. You guys have blessed us beyond words! Can't wait for the day that Killian can come to the office and give everyone hugs and Killian kisses :)!
This is what anyone who goes to their Facebook page will see, with a link to this blog!
Now, back to work so I don't get fired :)
xoxoxo Aunt Layna,
Killian's Social Media Coordinator
Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.
We are overwhelmed by the amount of people who have asked for an avenue to help Killian, Lindsey and the family. Any donation made below will go to help pay for food while staying in the hospital, gas back and forth, travel for family and the general care Killian will be receiving beginning on the glorious day he leaves the hospital!
All donations go directly to Killian's care and the care of his family. Also, ten percent of all money collected will be donated to Cherubs, The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. The paypal donation account was set up by a friend, Liz Wolfe, whose name and email appears on the PayPal page. Liz manages all donations with the support and oversight of Killian's aunt, Layna Lambert Dugan.
More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.