Killian Smiles!

Hi friends! As most of you know by now, the docs decided to wait another week before doing another echo on Killian to check his Pulmonary Hypertension. Just more time to pray that we see improvement!

But in the meantime, how is this for improvement!

• Killian is almost completely off his morphine with the help of methadone! Somehow one of his doses of methadone was missed yesterday so baby K did have hard time for a small while but is back on track now. 
• Early Saturday morning the docs reduced the pressures on the vent and the amount of oxygen support he was getting and so far so good!
• There are talks of trying him off the vent again this week since he's doing well on the lower settings and will (fingers crossed) be completely off of the morphine by tomorrow.
• And, what I think is the most exciting, Killian has discovered his own hands and he smiled yesterday!!! 

I would pay cold hard cash to have seen either of those things! "Why didn't you get a picture!" I jokingly yelled at Lindsey. "We were just in such awe of him smiling, we didn't think about it!" Lindsey said :).

Hey, what's that?

Physical and Occupational Therapy came in this week to work with Killian a bit. They showed Lindsey some exercises and massages she can to help him with his motor skill and muscle development. Apparently he likes it, because he's smiling about it! She said he put his hands up to his face and just looked like it was the first time he'd ever noticed them. I love that he's 2 1/2 months old and doing things that most babies would be doing at this time, too. While we know he has a long way to go, even the littlest glimmer of normalcy is like a breath of fresh air!

Look how big I'm getting!

Mr. Bright Eyes!

So lots and lots to be thankful for, but we can't stop praying and focusing on his pulmonary hypertension. Everything else can continue to improve, but unless that goes away or gets better, Killian doesn't get to come home. This week, let's show the PH monster who's boss by praying/positive thoughting it right out of his tiny little body!!! They said they'll do another echo on Friday. We'll keep you posted. 

And let's hope Lindsey can snap a shot of him smiling. I just my pass out from the cuteness!! :) Still giving all praise and glory to our Heavenly Father for getting us this far. Killian will be 10 weeks old tomorrow!!! 

Hugs and lots of love from Florida!
Aunt Layna
Killian's Social Media Coordinator

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Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.

We are overwhelmed by the amount of people who have asked for an avenue to help Killian, Lindsey and the family. Any donation made below will go to help pay for food while staying in the hospital, gas back and forth, travel for family and the general care Killian will be receiving beginning on the glorious day he leaves the hospital!

All donations go directly to Killian's care and the care of his family. Also, ten percent of all money collected will be donated to Cherubs, The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support.

 

More about CDH from CHD Support:

CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.