Monday, May 28, 2012

Quick Update

Happy Memorial Day! Thank you to all of the service men and women who have given up so much to defend our freedom. And a special shout out to Grandpa Garry and Grandpa Barry for their service too! Killian must have climbed out of his crib last night to put this up ;)

Speaking of heros, Killian is mine! He's been doing great since his (surprising) feeding tube surgery on Friday. He's obviously sore, and I would imagine trying to get used to yet another new hole in his body, but we're hoping and praying that  this G-tube, or button, is the blessing in disguise so many of you told us about.

Lindsey said that he is still getting visibly upset from time to time, but he hasn't had a major fit in a while. She also said he seems to be acting like he feels better. Praise the Lord! At one point, when he got upset, she just put on The Lion King for him and he calmed right down. This is especially sweet to me because when Lindsey was little bitty, I remember how much she LOVED The Lion King.

Hakuna Matata! It means no worries, for the rest of your days! 
In other exciting news, Dad and Kerry (or PawPaw Garry and Kerr-Bear) were in Nashville this weekend. I know it killed them to not be able to pick Killian up the way we have been, but they of course had an amazing time with our guy. I know they also experienced what I like to call the "Killian Time Warp", where spending 8 hours in the room with him feels like 10 minutes. Time goes too fast for those of us who live out of town.

Other than that, there aren't any real notable updates. Please pray for him and/or send positive thoughts as they start trying to wean him off his epidural tomorrow. They will take it down to half and give him Lortab. If he tolerates that, then they'll turn it off and give him more lortab and turn it off. They can also give him IV Tylenol to try and manage his pain. Poor baby :(. Also, pray that he adjusts well to having the G-tube and that maybe it will just make him feel better once the pain subsides.

Here are some ADORABLE pictures dad snapped over the weekend. We're thankful for you guys!
Kerr-Bear sings so much better than Aunt Layna!
Sweetly sleeping
Look everyone, NO TAPE on my little face!
PawPaw Garry reading me a story from the bible. I love him so much! 

Aunt Layna

P.S. Like his fan page to get the daily updates:
Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.

We are overwhelmed by the amount of people who have asked for an avenue to help Killian, Lindsey and the family. Any donation made below will go to help pay for food while staying in the hospital, gas back and forth, travel for family and the general care Killian will be receiving beginning on the glorious day he leaves the hospital!

All donations go directly to Killian's care and the care of his family. Also, ten percent of all money collected will be donated to Cherubs, The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support.


More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.

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