I am so sorry that it's been a while since the last blog post. To be honest, we've had so many great things to write about and share, but I didn't want to jinx anything and we're still trying not to! Remember that post sometime back where I said we were cautiously optimistic, well we have been back there, being very very cautiously optimistic.
And if you've been following Killian's Facebook fan page, then you know that we have date for discharge from the hospital!!! On July 9th, after 188 days in the hospital, 9 surgeries, 3 collapsed lungs, 2 pneumothoraxes, 4 attempts to come off the vent... our sweet precious warrior Killian Kayne Lambert (Killian means warrior and fierce mighty one) is coming home!!
I swear the last few weeks we have all run the gamut of emotions from relieved, to nervous, to anxious, to determined, to blissful and grateful. It all feels so surreal.
I cried my eyes out in church today when we sang "How Great Thou Art" and when I heard "How Great is Our God" not only because the words ring with soul shaking truth, but also because those are the two songs I sang to Killian the first time he opened his eyes.
We still needs lots of prayers and positive thoughts!! Here's what's going to happen over the next week:
Today- He got the last of his immunizations
Monday- 6 a.m. he'll get his last dose of clonidine
Tuesday- They are going to turn off his B6
Wednesday- Observation day
Thursday- Aunt Layna arrives!
Friday- Lindsey moves to the step down unit and stays with Killian with little to no help from nursing staff to make sure she can feed him through his feeding tube, change the dressings, administer his medication, etc. And PawPaw Garry and Kerr-Bear arrive.
Saturday-Another day in the step down unit
Monday- (knock on wood and LOTS OF PRAYERS) We bring our boy home!!!!
1 Corinthians 16:13 Be on your guard; stand firm in the faith; be courageous; be strong.
|In my stroller practicing for Monday July 9!|
|Just being cute. You know how I roll.|
Love you all!!!
xoxox Aunt Layna
Killian has been fighting - like a champion! - for his life since he was born. Because Killian's family is so spectacular; their friends decided to create this website in their honor to help in any way possible.
We are overwhelmed by the amount of people who have asked for an avenue to help Killian, Lindsey and the family. Any donation made below will go to help pay for food while staying in the hospital, gas back and forth, travel for family and the general care Killian will be receiving beginning on the glorious day he leaves the hospital!
All donations go directly to Killian's care and the care of his family. Also, ten percent of all money collected will be donated to Cherubs, The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support.
More about CDH from CHD Support:
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.