tag:blogger.com,1999:blog-835736905280580071.post409379896855298439..comments2023-07-02T05:21:35.661-07:00Comments on Killian Kayne - CDH Support: What's Life Like At Home?Killian's Familyhttp://www.blogger.com/profile/01326939193385864409noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-835736905280580071.post-53213814148678105532012-10-13T16:26:45.032-07:002012-10-13T16:26:45.032-07:00HI Baby Killian and Family
My name is Jenna and I ...HI Baby Killian and Family<br />My name is Jenna and I came across your site. Baby Killian is a precious miracle, special gift, handsome prince and cute earthly angel. He is a smilen champ, courageous fighter, brave warrior and an inspirational hero. He and your family will be in my thoughts and prayers.<br /><br />I was born with a rare life threatening disease, developmental delays, 14 medical conditions.<br />http://www.miraclechamp.webs.comSmilen Champhttps://www.blogger.com/profile/16312018180245012719noreply@blogger.comtag:blogger.com,1999:blog-835736905280580071.post-61190746793278588682012-08-09T13:37:43.350-07:002012-08-09T13:37:43.350-07:00Have been thinking about Killian and all his dear ...Have been thinking about Killian and all his dear ones. We got to go on a little vacay with Sam so I am just catching up now and glad to see news. I do know what it is like wondering if every cry is normal baby stuff or something dangerous. It is hard not to be on edge with all of that. It does get better over time. <br /><br />The development stuff is a bit hard, I find. Samuel is caught up in some areas (social, eating) but not others (speech and gross motor, particularly shoulder/trunk strength). I have had to learn to let him be on his own path with these things and not compare him to charts or other children. But some days that is easier said than done. I have found myself fudging his age when people ask as I just don't always want to explain why my 18 month old is so little and doesn't do 18 month old things. :)<br /><br />I am, as always, praying for your beautiful little family. <br />Corinne, mama to Samuel<br />www.samuelslight.blogspot.comCorinnehttps://www.blogger.com/profile/01570660912330119673noreply@blogger.com