tag:blogger.com,1999:blog-835736905280580071.post2439646843698656985..comments2023-07-02T05:21:35.661-07:00Comments on Killian Kayne - CDH Support: The Latest On KillianKillian's Familyhttp://www.blogger.com/profile/01326939193385864409noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-835736905280580071.post-62216740831066912962012-05-21T11:23:45.899-07:002012-05-21T11:23:45.899-07:00Thank you so much Jennifer!!! It's great to kn...Thank you so much Jennifer!!! It's great to know that we're not crazy for feeling like this right now. What a blessing your comment has been to me today. :) -LaynaKillian's Familyhttps://www.blogger.com/profile/01326939193385864409noreply@blogger.comtag:blogger.com,1999:blog-835736905280580071.post-23198345849576211342012-05-21T05:46:25.777-07:002012-05-21T05:46:25.777-07:00You know what, these are some of the toughest days...You know what, these are some of the toughest days. I remember that when Dakota was on ECMO, I was strong and steady as a rock! I was positive and while I was scared out of my mind, I was not overly emotional. It was after Dakota was out of the danger zone. When I knew she was coming home, just a matter of when and how, when I started to break down. Every thing that happened from that point on would deeply affect me and scare me. Dakota started desatting briefly when she would eat sometimes. It was determined that she would start to get overwhelmed and would clamp her throat as a natural response to prevent choking. This would cause her face to turn red and her sats to plummet, then they would come back up. I have to tell you that those alarms scared me more than the alarm on the ECMO machine when they couldn't get the flow they needed. Many, many prayers that they figure what's going on out and that you have a good week and that the light of the end of the tunnel gets brighter and brighter. Hugs!!<br />Jennifer<br />Mom to Dakota 12-25-2008<br />RCDH survivor <br />jennifertrafton@hotmail.comJennifer Tenneyhttps://www.blogger.com/profile/00964328379682764404noreply@blogger.com